Note the 'For now' part of the original statement.
My speech at my Great Strides walk today. I was really nervous so please disregard the stuttering. But yup, this is what I worked on all last week. I made my whole team cry and I started crying too..
Hey you, if you’ve got five minutes to spare check out the beautiful Erin giving a speech on CF (the chronic lung condition I have/talk about) - it’s clear and concise and I think she did an excellent job. Plus she has the cutest sounding voice ever.
How successful do you think a tumblr meetup charity event would be in the UK? And do you reckon we could somehow persuade UK loving John Green to come along?
I know that sounds random and irrelevant but I was thinking about CF (Cystic Fibrosis) awareness, and Hazel Grace is as close as I’ve ever felt to any fictional character, having CF (end stage) lung problems and all so… JUST CURIOUS LIKE.
Not sure what the event would be, just been randomly thinking about it… Another couple of relevant people would include Wayne Rooney (one of his best mates died from CF), Olivia Cooke (plays Emma Decody in Bates Motel, as a CFer herself), plus loads of other celebs associated with fundraising for CF (see here and here, although there are others…) or writers (Orla Tinsley had CF, Travis Flores has CF, etc) or musicians (Alex Stobbs?!) etc. Just trying to think of the best way to incorporate everyone into one or a series of events. I haven’t thought it through in great depth but I’m always up for a challenge…
Let me know your thoughts. And JOHN GREEN, OI, DON’T SKIM PAST THIS POST, I KNOW YOU’RE TRACKING YOUR OWN TAB.
Please and thank you ;)
YAY HE DID IT!
My mate Phil shaved his gorgeous long locks off for the Cystic Fibrosis Trust - a noble cause I think we’d all agree?! ;)
Pleasepleasepleeeeease keep adding to the money pot HERE, in honour of his shiny head.
And this is a more visual summary of what I’m doing for charity
So one of my dearest tumblr lovers (you heard it here first) is shaving his head for the Cystic Fibrosis Trust!!!! The absolute beauty has never been hairless before and he’s about to go mental and get rid of the lot for my nearest and dearest charity. If you could spare £5 (that’s less than the cost of your average pizza) go on and get sponsoring!
I’m about to sponsor him too, as soon as I’m detached from this oxygen and these 2 drips… the money Phil’s raising will go towards research to cure unfortuntes like me and stop us having to live our lives progressively through the hospital system, with such low average life expectancies. It’s a worthy cause ladies and gents, SHOW US THE MONEY!
I’ve been looking into something a little controversial, to raise awareness and money for CF and transplants…
I’ve been looking into boudoir photo shoots.
Ok so, aside from the fact that I’ve always wanted to do one anyway, just for myself more than anything, I thought about how this could tie in and actually make money for charity…
There’s this CF girl called Kerry, who’s been on the transplant list a few times now, still with no luck. She’s done some awareness raising by posing for pictures for lltgl.org.uk, with the slogan ‘Would you give her one?’/’I’d give you one’ on and I reckon, in underwear, that’d do the cause some serious favours.
I’ve been trying to think of ways of doing similar things without infringing on copyright, unless I get in touch with the guys that are running the campaign… simply because I’m not on the transplant list yet, but know people that are (Kerry included) and inevitably will be at some point, unless I pop my clogs before then…
But yeah, I’ve got this cracking image of a behind shot in underwear looking pristine and then a frontal with the outlines of my organs drawn on me and oxygen and all sorts. I don’t know how to explain it, but in my head it looks good. Either that or I’ve got the image of lots of different girls in underwear with just one organ outlined on their body while they pull various different pin up poses. It works in my head but I guess we’d see.
Is it verging on ridiculous or does anyone actually see where I’m coming from with this? I reckon posters of that around unis and stuff like that would get people signing up no sweat ;)
Awareness is the only way to get people to opt in until it eventually becomes an opt out ball game.
29 April - 5th May is Cystic Fibrosis Week (also known as CF week) in the UK. This week is used among the CF community (and all extended connections) to raise awareness and money for Cystic Fibrosis (the condition I have and which I’m currently in hospital for).
During the next week or so I’m probably gonna spam your dash with info about what I have, photos of things I have or do and might even make a video or two about a life in the day of your average teen/young adult CFer!
If you want to start making a difference, search CF Week 2012 online for details of how to donate. You can also click here to add a twibbon to your facebook or twitter pictures!