Steff Lockey is fundraising for Cystic Fibrosis Trust

My friend Steff just got her confirmation of a place in the Great North Run in September for the CF Trust team and she needs sponsors! Anything you can give would be excellent (I’m planning a hearty chunk of charity loving when I get my student loan) and it would really motivate her.

She’s running this for the CF Trust, a charity that helps fund medical research and helps people with CF and their families (including me!). Please donate and reblog, THANK YOU!

My cousin Emily (currently works in banking in Japan) has a passion for adventure. She decided that she wanted to run the Gobi, totally self supported, in order to go on an even wilder adventure than ever before… but also, to help support me and others like me.

As most of you are aware, I have the genetic lung disorder Cystic Fibrosis. This is an incurable disease which affects over 9000 people in the UK and many thousands more worldwide. It affects my internal organs and digestive system, clogging them with thick sticky mucus, which causes difficulties with the transfer of water, salt and oxygen within the blood. My life expectancy and general quality of life is lowered because of this; I struggle to walk, eat, breathe, sleep and do every day tasks as I get older, and the average life expectancy of someone with Cystic Fibrosis sits at between 30 and 40 years of age, depending on the individual case. Many live beyond this age and yet many don’t even reach it, so we need all the support we can get for gene therapy and an eventual cure.

PLEASE, if you can spare any cash at all, click on the link above and sponsor my legendary cousin Emily Woodland, on her 250km journey through the Gobi desert. Thanks everyone! :)

VISIBLE children.

All of it makes sense. I’m not sure how much I agree or disagree with it… I was unsure of the charity and that’s why I haven’t given to invisible children. I will however be at one ‘cover the night’ nights because y’know, I really do think the awareness and cause is a good one. Kony needs to be stopped, he’s a despicable creature there’s no doubt. But funding their films is not the way to do it - they should recall that money from donations made specifically for that purpose, their own pockets or sponsors.

One thing y’all need to know though is that no big national or international charity gives 100% of it’s money to the cause. Every charity has a leader who is often paid and other staff members are employed by many charities. Unicef, cancer research, green peace, etc couldn’t run as successfully without permanent employees and people to keep the wheels turning. Someone needs to print their posters, someone needs to fund their adverts, someone needs to be the face of the charity 24/7 and no-one can afford all that time and effort for no money anymore. Yes there are always volunteers, but very few charities are run on a no claim 100% volunteer basis.

Please click and donate any spare money you’ve got!

The CF trust has an October deadline and they need to raise £6million before then to insure we get the gene therapy trials - this gene therapy could extend the lives of CF suffers all over the world, and since a 19 year old girl from my CF unit died today, I think this is even more important… don’t you?

1 in 25 people in the UK are affected by the faulty CF gene, with over 9000 people currently living with it across with country. Each week 2 young lives are lost to Cystic Fibrosis. Less than half of the CF population will make it past their late 30s.

Help now! PLEASE!