Just call me Coco...
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For now, this is just general musings and a space for moaning.
Note the 'For now' part of the original statement.
Note the 'For now' part of the original statement.
YAY HE DID IT!
My mate Phil shaved his gorgeous long locks off for the Cystic Fibrosis Trust - a noble cause I think we’d all agree?! ;)
Pleasepleasepleeeeease keep adding to the money pot HERE, in honour of his shiny head.
3 months ago on February 12, 2013 at 10:25pm
Just some of the medication I’m on. These are the majority of my orals:
Moxifloxacin, Doxycycline and Clarithromycin are the antibiotics, Amikacin is an antibiotic nebuliser, Tranexamic Acid is to stop the internal bleed (due to pressurised burst blood vessels in my lower lungs) and vitamins to replace any that I don’t naturally absorb.
1 year ago on April 29, 2012 at 01:47pm
Today marketh the start of ye olde CF WEEK!
29 April - 5th May is Cystic Fibrosis Week (also known as CF week) in the UK. This week is used among the CF community (and all extended connections) to raise awareness and money for Cystic Fibrosis (the condition I have and which I’m currently in hospital for).
During the next week or so I’m probably gonna spam your dash with info about what I have, photos of things I have or do and might even make a video or two about a life in the day of your average teen/young adult CFer!
If you want to start making a difference, search CF Week 2012 online for details of how to donate. You can also click here to add a twibbon to your facebook or twitter pictures!
1 year ago on April 29, 2012 at 01:36pm
www.virginmoneygiving.com/charities/cftrust ›
Please click and donate any spare money you’ve got!
The CF trust has an October deadline and they need to raise £6million before then to insure we get the gene therapy trials - this gene therapy could extend the lives of CF suffers all over the world, and since a 19 year old girl from my CF unit died today, I think this is even more important… don’t you?
1 in 25 people in the UK are affected by the faulty CF gene, with over 9000 people currently living with it across with country. Each week 2 young lives are lost to Cystic Fibrosis. Less than half of the CF population will make it past their late 30s.
Help now! PLEASE!
1 year ago on September 21, 2011 at 09:14pm
